Katie's Cancer Journey (Dec 2023 - 2028)

[KT 💣 KλBoƠM]

Seems bad at first read but you’re standing strong! It got smaller meaning the chemo and rad is working and it should go way better now that the bigger ones are not there, your body can focus on fighting the rest!

As for peing blue doesn’t scare me, i pee blue every year because it’s my favorite food dye and on my birthday i eat soo mich of it I just pee it out lmao. I loooove the metallic taste of blue.

lol @ Kodi!

Ya I haven't started radiation yet. But yes the chemo made it smaller and that is excellent!

[Sandman[SA]]

i pee blue every year because it’s my favorite food dye and on my birthday i eat soo mich of it I just pee it out lmao. I loooove the metallic taste of blue.

Now that makes me worried.

[KT 💣 KλBoƠM]

Rebandaging my boob incision made me pee more blue ... so now I feel like my boob is one of those squeeze things of blue icing

[Kodiac]

Oh yeah reminds me of the singer in the fifth element.

[Sandman[SA]]

Rebandaging my boob incision made me pee more blue ... so now I feel like my boob is one of those squeeze things of blue icing

Well that just inserted some disturbing thoughts.     Hey babe.  Let me get some icing for my blueberry muffin.   

[KT 💣 KλBoƠM]

Rebandaging my boob incision made me pee more blue ... so now I feel like my boob is one of those squeeze things of blue icing

Well that just inserted some disturbing thoughts.     Hey babe.  Let me get some icing for my blueberry muffin.   

Oh geeze lol 

As it is my hair is growing again on my head (very patch though where I thought it would all grow back even) and my eyebrows are coming back in! I am not getting all excited though as they could not get all the cancer so I will need MORE Chemo .. which means I will lose it all again anyway. My follow-up appointment is in 3 days from today (on the 5th).

Also tomorrow I am getting an X-Ray done as my Chemo port stopped working after it was used for the lumpectomy surgery. When I got my Herceptin last Monday it would not work and they had to give me an IV in my hand. The nurse had a helmet with special lenses where she could see my veins and got it first try! Man I wish they had that at all the labs!!

[KT 💣 KλBoƠM]

I will have my second cycle of the new Chemo next Monday but this Thursday I will talk to the new doctor, the Radiation Oncologist. I really thought they would wait until the chemo is done before starting radiation. That is a whole new ball of ugh! Friday I go for my pre-chemo blood labs to see how my heart is doing (as this all is very hard on my heart) as well as make sure my kidney is hanging in there. Tomorrow I am getting an ultrasound and the next day I am getting an EchoCardioGram (ECG) for the heart. This week is so packed with appointments and then later this month I go for other tests but this has already become my new normal.

I play games when I can between appointments, how chemo is affecting my body and my mom's health (still undiagnosed) and my uncle's brain damage and severe stroke and memory loss and hemiplegia. It has been crazy.

On top of that I got rid of my credit cards as part of my insolvency to try to live within my means as disability cut back how much they are giving me (I mentioned that before in Feb) and it has been severely tight (I can't pay all my bills but have to play the juggling game, thus why I WAS using my CC so much). I might have to start looking for cheaper internet but chances are they won't have the high speeds I am used to currently. But it is my most expensive bill right now. I already have no TV, VoIP phone and a decade old cell phone. I don't know how they expect me to live like this to be honest... and I still do not get why how much I get from Provincial Disability dropped as soon as I started Cancer treatments. It makes no sense and I still feel that the new case worker screwed up calculations. But when you have all this going on, it is hard to confront her while balancing everything else.

In a way the hair loss wasn't as traumatizing as people make it out to be but I think perhaps that is because I have been through so much that I am more or less desensitized to changes to my appearance by now. I found out my head is not a smooth favourable shape but I could wear hats and scarves and my wig. Now that my hair is growing back I have to shave again! Oh no! lol  the one thing I did NOT miss

I had a dream a few nights ago that I put my hair up in a pony tail! That will still be awhile off but I guess my mind is ready for it

[Sandman[SA]]

Man oh man, things for you sound like it's getting kind of rough.  But got to get a handle on those finances for sure.  Maybe there is some way that you can earn a little something on the side to help get you by?  I really don't know how but there has to be something you can do.  But keep on hanging in there Angie.  You'll get through this cancer thing eventually.

[KT 💣 KλBoƠM]

Man oh man, things for you sound like it's getting kind of rough.  But got to get a handle on those finances for sure.  Maybe there is some way that you can earn a little something on the side to help get you by?  I really don't know how but there has to be something you can do.  But keep on hanging in there Angie.  You'll get through this cancer thing eventually.

Thanks. Ya the only thing I could think of would be working on Pesky Pete's website again but I really don't want to as he takes advantage of everyone he gets to work for him. He is super lazy with huge ambitions. He is the type who has big dreams but wants to ride someone else's coat tails.

I have my mom coming with me tomorrow for the radiation oncologist. I have enjoyed the earlier appointments this week but tomorrow's is in the early afternoon instead. It will be even harder to get parking than it already is (pretty much guaranteed that even people who can't walk have to part at the far end of the parking lot due to all the spots taken up for most of the 8am - 4pm time slot and my appointment is 1:45pm). I am just glad I can walk but feel bad for those who walk with crutches, canes, and walkers. But I will update tomorrow when I have more info on my future radiation and when that will start and if it will be 5 days a week every week as originally planned.

[KT 💣 KλBoƠM]

 It went better than I expected as my radiation oncologist is easier to understand than my chemo oncologist was. He explained everything to me and was very patient and took the time to even listen to my mom explain how things were when I was a baby with kidney disease (at that time still undiagnosed) and turns out he has a teen daughter who has a baby was diagnosed with the same renal reflux I had but got the surgery whereas when I was a baby it was missed leading to the loss of my kidneys.  I know most doctors would have gotten impatient about my mom talking about something not relevant to what I was there for but he was very nice.

My Radiation WILL be at the same time as I am getting my Chemo and the radiation will be 5 days a week every week but just for an hour targeted from 4 sides of the area of the cancer to get rid of any residual cancer. But the radiation will only be for 6 weeks. Also they are very willing to work around any other appointments I have which I am very happy about.

My skin will be red and itchy and like a sun burn but they will give me creams that even if my disability won't cover they will work with me so that I will get it. I have been set up with a cancer social worker finally (since this doctor actually listened I was able to talk about my finances during this time which has been extremely hard) to work with me and my disability to get the things I need covered. So over all, it was a good appointment.

Tomorrow I go for my blood labs since Monday is my next chemo.

Wednesday I will get mapping done so they know the area to target with the radiation.

[Kodiac]

Have a nice radiation sesh

[KT 💣 KλBoƠM]

Have a nice radiation sesh

I can officially say I have tats now but just are just dots but are the same thing as real tats. They are to mark the areas to be radiated.

They say I will know soon when I start but it will definitely be within the next couple weeks. And yes some of the days will fall on my Chemo days.

[Sandman[SA]]

I can officially say I have tats now

Too bad they are not tats you could be proud of sharing.

[KT 💣 KλBoƠM]

I can officially say I have tats now

Too bad they are not tats you could be proud of sharing.

YOu don't have any neither

[Sandman[SA]]

YOu don't have any neither

Well, no?